Are you READY to #WearYellowAndShine?

Are you READY to #WearYellowAndShine?

Are you ready to “Go loud, feel proud and wear yellow – and help Shine celebrate its 50th year?

Here at Shine we would love it if you’d join us to make Shine’s Golden anniversary year extra supa special by holding a Wear Yellow and Shine event at your school, college, workplace, care home, nursery or anywhere really:)

Wear Yellow and Shine Button

By doing so you will be helping to raise essential funds in a fun way, to support everyone with spina bifida and/or hydrocephalus.

And……… you are NOT restricted to wearing yellow!

You can also ………… wear yellow, bake yellow, ride yellow, tattoo yellow, whatever works for you… AND remember to get a snap or two and share on line with with us!:)

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Additional Wear Yellow and Shine Info:

Members invited to join the Shine Board!

Members invited to join the Shine Board!

Shine presently has three vacancies for Board members, including a Trustee to represent Northern Ireland.

Two of our current members who were elected three years ago have expressed a desire to stand again, but any member can stand for election.

Shine Board

At least 50% of Shine’s Board must have personal experience of spina bifida and hydrocephalus, or of supporting someone with one or both conditions.

“I strongly believe in the work that Shine does in helping to enrich people’s lives. The opportunity to contribute to the outstanding work that takes place by a large number of individuals is very rewarding.” – Michael Brown, Shine Board Member.

All trustees also bring relevant expertise such as social care, health, legal, HR or business experience.

For more information on the vacancies, please contact Margaret Conner on T: 01733 555998 or fill in the form below!

  • For a list of the present Board members please visit the Shine website!

#NorthernIreland hosts 1st Prenatal Surgery Conference (For professionals only)

#NorthernIreland hosts 1st Prenatal Surgery Conference (For professionals only)

The UK’s first conference dedicated to prenatal surgery in spina bifida will soon be bringing specialists around the world together to discuss this important treatment option.

The first event of its kind for professionals in the UK will take place on Tuesday 7th June at the Emeleus Lecture Theatre, Queen’s University, Belfast.

The study day will consider the benefits and risks for mother and baby of open pre-natal surgery, fetoscopic, and standard postnatal surgery, as well as ethical aspects and implications for future policy and research.

The event is being hosted by Shine, a charity which offers a range of services for people with spina bifida and hydrocephalus, and brings together more than 120 delegates from across Europe, including obstetricians, paediatricians, neurosurgeons, nurses, midwives, allied professionals and Shine’s own specialist team.

It was out of concern to ensure that newly diagnosed families have a full range of treatment options available and understand the benefits and risks involved, that co-event organisers, Cathy McKillop, Dr Stephen Ong, and Dr Jackie Cartmill came up with the idea of arranging the study day.

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“There have been amazing advances in prenatal surgery over the decade, bringing about new approaches in prevention and treatment, yet there is still a lot to learn. We are delighted by the international interest this event has generated and the quality of speakers involved.” – Cathy McKillop, Shine’s Northern Ireland Director

Dr Ong (pictured below), an obstetrics consultant at the Royal Jubilee Maternity Hospital, Belfast, said: “Pre-natal surgery has been available in some European countries and the USA, but is not available yet in the UK. This conference will give us enough time to consider the different issues, benefits and risks associated, so that we have clarity when advising newly diagnosed families.”

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Dr Ong continued: “If the consensus is that pre-natal surgery should be a recommended option in the UK, then this may influence the thinking of commissioners in ensuring that the treatment is available here.”

The conference is sponsored by MDI Medical, The Perinatal Trust Fund (NI), Public Health Agency (NI) and Shine.

#ShineEvent – Family Day @BirdworldSurrey #Farnham

#ShineEvent – Family Day @BirdworldSurrey #Farnham

Event Date/Time: August 17, 2016 10:30AM – 12:00PM
Location: Birdworld, Holt Pound, Farnham, Surrey, GU10 4LD

Are you looking for something fun to do during the summer holidays?

If you have a child aged 16 or under, come and join Shine for a family day out at Birdworld. Please bring a picnic!

Booking is essential as places are limited.

  • Event: Shine Event
  • Event Type: Social
  • Event Cost: Ticket in advance
  • Cost Details: £5 per family
  • Venue website: www.birdworld.co.uk

Birdworld

Payment via cheque or postal order (payable to Shine) to be sent to the Southern Office for the attention of Joanne Tailor.

For more information please contact Joanne Tailor by Monday 1st August to confirm your places. E: joanne.tailor@shinecharity.org.uk or T: 01959 534618

We’re looking for a NEW Chair of Trustees!

We’re looking for a NEW Chair of Trustees!

Shine, the national charity supporting everyone affected by spina bifida and hydrocephalus, is looking for a new Chair of Trustees, to replace our current Chair, Richard Astle, who will be standing down after 12 years of dedicated support for the charity.

Shine is celebrating its 50th anniversary and the Chair’s role provides an opportunity to build on the fantastic work already done. The position requires an individual with exceptional leadership skills to drive the charity forward, working with the Chief Executive and the Board of Trustees to determine the priority work Shine needs to do to support the membership, and to develop and implement a new Five Year Plan to meet these needs.

Candidates will have the opportunity to talk to members of the Search Committee and senior staff, and will then be asked to submit an application if still interested.

Richard Astle

For more information on the vacancy, please contact Margaret Conner, Finance Director on 01733 555988 or email margaret.conner@shinecharity.org.uk or visit the Shine webpage (which also includes additional info).

Closing Date for Applications: 5:00pm 31st July 2016. Interviews will take place in September with the appointment at the AGM in November.

“…cuts are possibly the biggest obstacle hampering the [Care] Act’s success.” – @IrwinMitchell

“…cuts are possibly the biggest obstacle hampering the [Care] Act’s success.” – @IrwinMitchell

A year after it was introduced, Disability Rights UKs legal partners, Irwin Mitchell Solicitors, say that budget cuts and a lack of compliance from local authorities are making The Care Act less effective than hoped.

The new legislation consolidated all existing laws relating to adult social care and introduced new duties, aimed at providing better support for disabled adults and carers. The key changes included:

  • New rights for carers – for the first time, carers of disabled adults were given equal rights in law to those they care for.
  • The introduction of a wellbeing principle and other key duties – these duties underpin any decision made by a local authority and require councils to promote a person’s wellbeing in any decision being made about their care and support.
  • The introduction of the national eligibility criteria – this criteria replaced the previous eligibility system where eligibility could vary from council to council.

The Care Act 2014

Caroline Barrett from Irwin Mitchell’s Public Law team said:

“Massive budgetary cuts are possibly the biggest obstacle hampering the Act’s success. This year many local authorities have made cuts to the funding for adult social care so the question is, how can the Care Act duties be enforced when there may not be enough money in the system?

“The duties of local authorities under the Care Act are not optional and they must comply with them but with cuts to the amount of provision on offer in many areas, councils could run the risk of being challenged in the courts.”

REMEMBER to let us know YOUR thoughts below!

Shine selected by @RawlinsonsUK in 75 charitable acts anniversary challenge!

Shine selected by @RawlinsonsUK in 75 charitable acts anniversary challenge!

Peterborough based accountancy firm Rawlinsons is celebrating its 75th anniversary by completing 75 charitable acts in 75 days – starting on June 1. Events range from a 75km walk to taking to the water for an annual dragon boat festival.

Staff from across the business will be taking part in a series of events and volunteering in projects to support local charities with either fund-raising or labour.

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The five charities to benefit from the fund-raising marathon are NSPCC Peterborough Business Support Group; Shine; Sue Ryder Thorpe Hall Hospice; Macmillan Cancer Support and the Peterborough Cathedral 900 Appeal.

They’ll also be doing volunteer work with Shine, helping out with some marketing survey support.

Chris Collier FCA CTA and Mark Jackson FCA DChA, from Rawlinsons, in action previously, supporting the work of Shine!
Chris Collier FCA CTA (right) and Mark Jackson FCA DChA (left), from Rawlinsons, in action previously, supporting the work of Shine!

We have been part of city life for 75 years and it seems fitting that in this special year, we should choose to give something back to the local communities we have served,” said Rawlinsons managing partner Colin Crowley.

Additional Sources: