EVENT: Shine Bucks and Herts Support Group #SpinaBifida #Hydrocephalus

EVENT: Shine Bucks and Herts Support Group #SpinaBifida #Hydrocephalus

Event Date/Time: June 10, 2016 10:00AM – 12:00PM
Location: Vale of Aylesbury Vineyard, The Vineyard Centre, Gatehouse Close, Aylesbury, Buckinghamshire, HP19 8DN

A Shine support group meeting for parents in Hertfordshire/Buckinghamshire of children with spina bifida and/or hydrocephalus aged 0-15 years old.

Fully accessible venue with tea and coffee making facilities.

aylesbury Shine Teens

  • Event: Shine Event
  • Event Type: Social
  • Event Cost: Free
  • Cost Details: This is a free Shine event.

For further details please contact lead parent Elizabeth Pottinger by E: lizziereynier@hotmail.com or Shine Regional Development Manager Dave Isom, by T: 01733 555988 or E: david.isom@shinecharity.org.uk

Shine Teens

4 years ago this week – Shine member and pool star made history by lifting league doubles title!

4 years ago this week – Shine member and pool star made history by lifting league doubles title!

Did YOU know, that 4 years ago this week, POOL star Ian Lea, who was born with spina bifida and plays from his wheelchair, became the first disabled player to lift a March pool league doubles trophy! (source)

Back then, Ian cruised to victory with partner Declan Gilmore on Sunday 24th April, with a whitewash of Tony Nosworthy and Anthony Henson 5-0 to secure the Cherry Automatic March & District Pool League doubles title.

Ian Lea

“I was really nervous before, but once we started the nerves turned to concentration – everything that we went for just seemed to come off. It made me feel very proud to win it.” Ian Lea (From Turves)

Ian Lea

Since that day, Ian has continued to play pool regularly and this year his team won the Division 1 & Team KO Cup titles! – Not bad, eh?

For more information and details on the Club Q March and District Pool League please visit their website!

Have you heard about the Shine Health Hub?

Have you heard about the Shine Health Hub?

The Health Hub aims to offer all-round support to people with spina bifida and hydrocephalus, providing health checks for those able to visit the health suite, and telephone, and online support to anyone with SB/H in need of help.

All Shine’s health services staff are fully qualified nurses or Occupational Health practitioners. As well as offering general help, Robin Barnatt also specialises in keeping people mentally healthy.

Health Hub

Gill Yaz, who manages our health services, has almost twenty years experience in working with people who have SB/H and parents diagnosed with an NTD pregnancy. We also have nurses on the staff in some of our regions and we hope there will soon be a regional health lead in each regional team.

Through our Health Hub work we can offer support with any health issue affecting our members. We not only offer advice but can help you in managing your relationships with the health services that you access within the NHS and elsewhere.

“We not only offer advice but can help you in managing your relationships with the health services that you access within the NHS and elsewhere.”

Health Hub

Bladder problems can be a particular challenge for people with spina bifida. The generous donation of £4,500 from Peterborough Lions for a new bladder scanner enables our specialist team to spot urinary problems which are a common cause of incontinence, infections and kidney damage that reduce quality of life, and can be life-threatening.

Health Hub Kitchen

The Health Hub also has an independence training kitchen suitable for people with severe disabilities to enable them to learn basic cooking, cleaning and household management skills; Independent living skills in a accessible training kitchen facility.

Health Hub Kitchen

Snaps of SHINE at the @LondonMarathon 2016 NOW ON-LINE! @Flickr

Snaps of SHINE at the @LondonMarathon 2016 NOW ON-LINE! @Flickr

The London Marathon is a long-distance running event held in London. It was first run on 29 March 1981 and has been held in the spring of every year since.

A record total of 247,069 people entered the ballot for the 2016 Virgin Money London Marathon. Over 39,000 runners were on the Start Line on Sunday 24 April.

Including the Shine super stars who battled on through to help raised funds that will help our charity continue its essential work!

London Marathon 2016

If you or someone you know would like to #Run4Shine then you can find out more, and sign up, by VISITING HERE!

An opportunity to engage with Shine staff, volunteers and each other! #Coventry

An opportunity to engage with Shine staff, volunteers and each other! #Coventry

An event for families with a child aged 0 to 5 years old with Spina Bifida and / or Hydrocephalus.

Family Opportunity Weekend

  • There will be lots of fun, family portraits and social time together in a safe and friendly environment.

Family Opportunity Weekend

  • And there will be Benny Bear’s special party in our Golden Anniversary year!

For further information please visit the main SHINE website!

Cost: £190 per family.

Event Date/Time: October 7, 2016 3:00PM – October 9, 2016 4:00PM
Location: Holiday Inn Coventry M6 J2, Hinckley Road, Coventry, CV2 2HP

For an application form, please contact Denise Richardson or Joan Pheasant at Shine, 423 Kirkstall Road, Leeds LS4 2EW, or T: 01132 556767 or E: office@shinecharity.org.uk

Closing date for applications: 15th July 2016.

Go Folic! Awareness event @Asda in #Shirley #Solihull

Go Folic! Awareness event @Asda in #Shirley #Solihull

Event Date/Time: May 3, 2016 10:00AM – 3:00PM

Location: ASDA, Parkgate, Sretford Road, Shirley, Solihull, B90 3GG

This is a Shine awareness event and information stand as part of our Go Folic! campaign and this year’s Folic Acid Awareness day.

Go Folic! is a national campaign started by the charity Shine in 2011, to help raise vital awareness among all women of childbearing age about the importance of taking folic acid BEFORE becoming pregnant.

It's over 23 years since scientists proved that folic acid helped to reduce the risk of Neural Tube Defects.
It’s over 23 years since scientists proved that folic acid helped to reduce the risk of Neural Tube Defects.

Doing this helps reduce the risk of serious birth defects of the brain and spine, called Neural Tube Defects, like spina bifida and anencephaly.

  • Event: Shine Event
  • Event Type: Information
  • Event Cost: Free
  • Cost Details: No costs.

For more information on the event, please contact our Regional Development Manager, David Isom by E: david.isom@shinecharity.org.uk or T: 01733 555988

  • For more details on the store and location please visit here!
  • For more information on the Shine’s Go Folic! campaign please visit here!

Can Shine’s Chairman complete a 50 mile charity walk…… in one day?

Can Shine’s Chairman complete a 50 mile charity walk…… in one day?

charity walk

Supporters at Shine are celebrating its 50th birthday by calling on friends to pull on their walking boots and join them for a 50 mile walk.

The challenge is for walkers and fundraisers to walk from Ely Cathedral to the Bluebell Inn in Helpston on Saturday, July 23. Participants can join in as much or as little of the walk as they like to mark the 50th year for the charity which helps families and individuals affected by spina bifida and hydrocephalus.

“This is a fantastic opportunity for us to celebrate and raise awareness of the vital work Shine does while marking its 50th anniversary.” – Richard Astle (Chairman of Shine)

charity walk

The route has stops in Welney, Turves, Whittlesey, the Key Theatre, Ferry Meadows and Helpston, and some of the legs are suitable for wheelchair users and pushchairs. Alternatively local businesses could create a team and treat the walk as a relay or even a competition!

“We’re aware it’s a big challenge but we’re hoping a lot of people will want to join. Even if you can’t do the whole 50 miles, feel free to join us for a mile or two. It’s going to be a fun opportunity to fundraise for a great cause.” – Richard Astle (Chairman of Shine)

For further information or to pledge support, please contact Shelley Green on shelley.green@shinecharity.org.uk or call 01733 555988.

charity walk