Don't forget to share YOUR snaps of YOU wearing yellow with us this evening! #ShineUKCharity 1000's of ppl are helping #ShineUKCharity raise AWARENESS 4 #SpinaBifida and #hydrocephalus today, by wearing yellow! There are endless ways to show your support for #ShineUKCharity #SpinaBifida #Hydrocephalus You can never wear too much yellow! #ShineUKCharity Q: Where will YOU be wearing yellow today? Raising awareness for #SpinaBifida and #Hydrocephalus #ShineUKCharity If you are wearing YOUR yellow today, we'd love to see your snaps! #ShineUKCharity #SpinaBifida #Hydrocephalus Who's wearing yellow today then? :) #ShineUKCharity #SpinaBifida #Hydrocephalus Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH Shine Lifelong Opportunities Weekends! Find out more by visiting: www.shinecharity.org.uk #SpinaBifida #Hydrocephalus #IIH

It’s WORLD #SpinaBifida and #Hydrocephalus Awareness Day! #WSBHD

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The World Spina Bifida and Hydrocephalus Day reminds the public and policy makers that Spina Bifida and Hydrocephalus are a reality and increases awareness about Spina Bifida and Hydrocephalus to improve the lives of people living with these conditions.

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For information please visit: www.worldspinabifidahydrocephalusday.com

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Please DO share this post and let as many of YOUR friends, contacts and followers know that today is the big day!

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“The World Spina Bifida and Hydrocephalus Day has been established and designated by IF’s General Assembly in Guatemala 2011 with the aim of raising awareness and understanding about Spina Bifida and Hydrocephalus. It serves also as means to advocate and promote the rights of persons with these conditions.”

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READ: The latest edition of Together Magazine! #ShineTogetherMag

Together14Well, as usual we have a packed edition of Together to share with you! We have everything from a Royal Garden Party to the latest social media news!

Still time to add YOUR support to our #SpinaBifida and #Hydrocephalus Awareness Day campaign! #WSBHD

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Add YOUR support by simply touching this image!

This year’s official Spina Bifida and Hydrocephalus Awareness Day, takes place on Saturday 25th October 2014.

Our aim on the day is to make even more people aware of spina bifida and hydrocephalus than EVER before!

It’s never been easier for you to help! All we need is for you to show YOUR support by using your Facebook, Twitter or Tumblr account.

To add YOUR support now, please either click/touch the image below or CLICK HERE!

You can view a video tutorial on how to add an account by Clicking Here!

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Add YOUR support by simply touching this image!

 

Cambs 0-5 years support group @PeterboroughTel @PeterboroughCC #SpinaBifida #Hydrocephalus

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Event Date/Time: October 29, 2014 10:00AM – 12:00PM
Location: Shine HQ, 42 Park Road, Peterborough, PE1 2UQ

A support group for parents/carers of children aged 0-5 years who have spina bifida and/or hydrocephalus/IIH.

Come along and enjoy a cup of coffee or tea whilst the children play.

Commenting, Shine Support and Development Worker, Sharon Lapsley said:

“This is a great opportunity to meet other parents. In addition a Shine Support & Development Worker is on hand to discuss in confidence any issues you may wish to raise.”

Parking is very limited at Shine but there is a Pay & Display car park located very close to our offices.

  • Event: Shine Event
  • Event Type: Social
  • Event Cost: Free

For more details contact Sharon Lapsley by T: 01536 400959, E: sharon.lapsley@shinecharity.org.uk or via Facebook.

REMEMBER you can also leave comments at the bottom of this page too!

So, let’s add NTDs to our list of global emergencies

So, let’s add NTDs to our list of global emergencies.

It’s #Spinabifida and #Hydrocephalus Awareness Week!

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Shine’s annual Spina bifida and Hydrocephalus Awareness Week aims to raise awareness of the conditions, while celebrating the fantastic achievements made by its energetic and growing community.

The third Spina bifida and Hydrocephalus Awareness Week will take place across England, Wales, and Northern Ireland from 19th-26th October 2014.

To mark the week, Shine encourages people to take part in its Wear Yellow and Shine initiative, which raised over £20,000 in 2013 to help the charity support everyone affected by spina bifida and hydrocephalus.

This year, in addition to Wear Yellow and Shine, we are launching a new initiative called #shinereflections, which aims to help boost awareness among Shine’s growing membership and active online community.

With funding from Roald Dahl’s Marvellous Children’s Charity, Shine has made three short #shinereflections films, which demonstrate the capacity of people living with spina bifida and hydrocephalus to overcome adversity. We are calling on the Shine community and anyone living with spina bifida and/or hydrocephalus to upload their own #shinereflections onto Facebook, to help raise awareness and inspire others through their stories.

Submit your video (approximately two minutes long) onto your Facebook profile and make sure to use the essential hashtag #shinereflections

For more information on sharing your #shinereflections email E: darren.fower@shinecharity.org.uk

You can also help raise awareness by simply adding your support to our Thunderclap campaign below. By adding your support through one of your social accounts, you’ll help let the world know about spina bifida and hydrocephalus awareness day! Simply click/touch the image below!

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EVENT: #Warwickshire Drop In for ppl with #SpinaBifida and #Hydrocephalus @Warwick_Courier

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Event Date/Time: October 21, 2014 10:00AM – 1:00PM
Location: Brunswick Healthy Living Centre, 98-100 Shrubland Street, Leamington Spa, CV31 3BD

This is a great opportunity for members to meet each other over a cup of tea or coffee and swap news and to update with Support and Development Worker, Elaine Adams.

Please wear something yellow to show your support for this year’s Wear Yellow and Shine as part of Spina Bifida and Hydrocephalus Awareness Week!

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  • Event: Shine Event
  • Event Type: Information
  • Event Cost: Free
  • Cost Details: Admission is free – refreshments available from cafe at the Healthy Living Centre

For more information or to confirm your attendance please contact our local Support and Development Worker Elaine Adams by E: elaine.adams@shinecharity.org.uk or T: 02476 683120 and REMEMBER you can also leave a comment below!

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MAP of LOCATION:

 

#Staffordshire #WearYellowandShine – #SpinaBifida #Hydrocephalus @Midstaffsnhs

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Event Date/Time: October 25, 2014 11:00AM – 2:00PM
Location: The Grocott Centre – Fenton, Sanderson House, Clarence Street, Fenton, Stoke-on-Trent, Staffordshire, ST4 2LA

Commenting, Shine Support and Development Worker, Liz Potts said:

“We would love you to come along and join us on world spina bifida & hydrocephalus day to help us raise awareness of the conditions and celebrate in this years “Wear Yellow & Shine” Spina Bifida and Hydrocephalus Awareness Week.”

Staffordshire “Wear Yellow and Shine” with Jackie Moore and ‘Crafts for Shine’. Come along and try your hand at card making, loom banding & knitting (If knitting and you have your own needles please bring them with you). Face painting, lucky lolly game, Shine merchandise and cake stall.

  • Event: Shine Event
  • Event Type: Social
  • Event Cost: Pay on the day – see details
  • Cost Details: A small charge for crafting materials of £2 per person and face painting £1 per child, or adult (any profits will go to Shine). Donations welcome for tea, coffee, juice & biscuits.

Don’t forget to “Wear Yellow & Shine.”

For more information or if you require any further information please contact Liz Potts via E: liz.potts@shinecharity.org.uk or M: 07789 616469

Shine Play and Stay @PeterPanNursery in #Staffordshire @SentinelStaffs

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Event Date/Time: October 18, 2014 10:30AM – 12:30PM

Location: Peter Pan Nursery, 12 Hoon Ave, Newcastle-under-Lyme, Staffordshire, ST5 9NY

The group is for the parents of children with spina bifida and/or hydrocephalus aged 5 and under to meet up and talk to one another whilst the children play.

Peter Pan Nursery is a great venue with lots of accessible play equipment for the little ones to explore and enjoy.

  • Event: Shine Event
  • Event Type: Social
  • Event Cost: Free
  • Cost Details: Donations for tea, coffee etc would be much appreciated.
  • Website: http://www.thepeterpannursery.com

For more information of to confirm your attendance please contact Liz Potts via E: liz.potts@shinecharity.org.uk or M: 07789 616469

@TheLGArena improves accessibility with changing places facility!

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The LG Arena has invested in a new Changing Places facility as part of its customer experience programme. The ribbon was cut by Changing Places advocate Julie Clough and General Manager of Arenas, Guy Dunstan. The facility’s main aim is to give disabled customers greater convenience and comfort with extra features that aren’t provided in standard disabled toilets.

Located on the West Side concourse near the disabled ramp, the facility is in addition to 11 public unisex RADAR key operated disabled toilets already installed at the arena. Meeting the needs of people with multiple and complex disabilities, it includes a height adjustable adult sized changing bench and hoist; with adequate space for the disabled person and up to two assistants to manoeuvre with ease. It also features a privacy screen and height adjustable washbasin, plus a ‘Clos-o-Mat’ wash and dry automatic toilet; this has an additional optional touch-sensitive switch – a benefit to those with little body strength who wish to remain independent.

Emma Ball, Projects and Contracts Manager for the LG Arena, said:

“The Changing Places toilet increases our capability to accommodate everyone’s needs. It’s been on our ‘wish list’ for a while, so it is great we were able to secure funding to install the facility and now be able to open it.

“We know from customer feedback from the one already open within NEC, that the facility will be appreciated and used by our disabled visitors.”

These are just the first of many customer experience improvements at the LG Arena, with more scheduled for the coming months.

Guy Dunstan, General Manager of Arenas and Chairman of the National Arenas Association said: “As one of the largest entertainment venues in the world, the LG Arena is committed to giving all customers the best experience possible by making sure everyone’s needs are met.”

Sister venue, the NEC, unveiled its own Changing Places accessible toilet last year, in the main Hall 20 Atrium.

For more information about Changing Places please visit www.changing-places.org

Changing Places Facility Opening LG Arena

World Spina Bifida and Hydrocephalus day!October 25th, 2014
It's World Spina Bifida and Hydrocephalus day!

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