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To early to start thinking about an Xmas #Party? Not for our guys in #Berks, #Oxford, #Bucks! :) @TheOasisReading

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Event Date/Time: December 13, 2014 2:00PM – 4:00PM
Location: The Oasis, 21 Baker Street, Reading, RG1 7XT

A fantastic opportunity for families with children under the age of 16 with spina bifida and/or hydrocephalus to meet and socialise with other families and enjoy an early Christmas Party!!

  • Event: Shine Event
  • Event Type: Social
  • Event Cost: Free
  • Cost Details: Free Entry – Please bring along a plate of party food and a small donation towards drinks.

For more information or to confirm your attendance, please contact Joanne Tailor via E: joanne.tailor@shinecharity.org.uk T: 01959 534618 or on Facebook!

For information on the venue, please visit their Facebook Page or follow them on their Twitter or have a look at their website!

Shine Under 5′s Play & Stay #SpinaBifida #Hydrocephalus @NewsNBC

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Event Date/Time: July 26, 2014 10:30AM – 12:30PM
Location: Peter Pan Nursery
, Hoon Avenue, Newcastle under Lyme, 
Staffordshire, ST5 9NY

The group is for the parents of children aged 5 and under to meet up and talk to one another whilst the children play. Peter Pan Nursery is a great venue with lots of accessible play equipment for the little ones to explore and enjoy.

 

  • Event: Shine Event
  • Event Type: Social
  • Event Cost: Free
  • Cost Details: Free event however we would appreciate donations for tea, coffee etc.

 

For more information or to confirm your attendance please contact Liz Potts by M: 0778 961 6469 E: liz.potts@shinecharity.org.uk or Facebook!

You can also get more details on the venue by visiting their website www.thepeterpannursery.com

Children’s Rendezvous South Bucks & South Herts @bbc3cr

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Event Date/Time: August 13, 2014 11:00AM  5:00PM
Location: Odds Farm Park, Wooburn Common Road, Wooburn Common, High Wycombe HP10 DLX

Enjoy all that Odds Farm Park has to offer in the company of other families and friends living with spina bifida and/or hydrocephalus.

Remember, if you’d like to bring a picnic with you too, please do!

  • Event: Shine Event
  • Event Type: Social
  • Event Cost: Ticket in advance – see details
  • Cost Details: If you let me know you’re coming and we get at least 20 people, we can have tickets at a cheaper rate, plus we can offer you £5 a family towards your ticket.
  • Website: www.oddsfarm.co.uk

To confirm your attendance or for more information please contact your local Shine Support and Development Worker, John Richards, via E: john.richards@shinecharity.org.uk or T: 01908 610611

#StevieWonder joins #MusicWithoutBarriers campaign @Attitudetweets @ThirdSector

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STEVIE WONDER, CHVRCHES and BELLE AND SEBASTIAN are the latest major artists to give their backing to #MusicWithoutBarriers – the recently-launched Attitude is Everything campaign that is that is highlighting music industry support for millions of Deaf and disabled fans to gain equal access to live music, by encouraging UK festivals and venues to sign the charity’s Charter of Best Practice.

The online initiative has already won support from a wide range of musicians, including Alt-J, The Cure, Franz Ferdinand, Villagers, Mystery Jets, Foals, Robert Wyatt, The Temper Trap and Anna Calvi, as well as more than 90 UK festivals and venues who have already signed the Charter.

Stevie Wonder, who gave an impassioned speech in support of disabled access during his headline Glastonbury performance in 2010, said:

“I strongly support the campaign by Attitude is Everything to gain full accessibility for people with all kinds of disability to festivals, shows and all areas of entertainment. It is incredible to me that in this day and age such a campaign should still be needed.”

Read more of what Stevie Wonder had to say and find out more about the campaign by CLICKING HERE!

ASBAH to Shine – Celebrating 50 years in 2016

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Our aim by 2016 is to remember the excellent work of this charity by having a lasting memorial. How are we going to achieve this? We are going to identify the most important landmark events throughout the history of spina bifida and hydrocephalus, and celebrate this in different ways. We could have a time line within the Peterborough Head Office, an exhibition of items from the past to the present. We will need stories told by members: written, recorded, or filmed. These need to be bite-sized, about specific issues and not life stories. They need to be positive and must reflect the remarkable achievements and, in some cases, the pitfalls experienced on the journey

Please contact Joan Pheasant if you wish to be involved and are willing to talk about your experiences. This could be something that has inspired you, or something you have achieved against all odds. You can give a short synopsis of your story via phone or email T: 0113 2556767 or E: joan.pheasant@shinecharity.org.uk

We are also looking for historic pieces of equipment and relevant objects of interest. Please send a photo of anything you have that you wish to donate or loan to the exhibition.

At Shine, we have many archived publications, including an almost full set of the Link Magazine but are missing the following copies – Issues 1, 10, 14, 44, 112 and 118. It would be great if we could find these. We would be pleased to hear if you have any other printed materials that we could use.

Do get in touch if you would like to be involved or have any ideas on how we can develop our Heritage Project to honour our 50 years of success.

Q: Who will Shine in 2014? @ThirdSector @CharityTimes

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The 2014 Shine Awards will be made at the Annual General Meeting on November 20th this year and the search for nominations is on!

These awards are a way for Shine to show its appreciation and gratitude to the people who contribute to its community in so many different ways.

Who would you like to nominate? To nominate someone for an award, please fill in the following form, making sure that you complete all the details, and return to us by Friday 15th August. If you prefer, you can go straight to www.shinecharity.org.uk/shineawards and complete the nomination online. You are able to make a nomination for more than one award

Whatever you do, please make sure you nominate someone who really deserves to be recognised. If your nominee is chosen, you will receive an invitation to come and see them receive their award.

Award Categories

There are four award categories for which Shine members can send in nominations. Please think carefully about anyone whose work or contribution merits a nomination by following the guidelines below. The categories are:

  • Shine Volunteer of the Year – do you know someone whose voluntary contribution is outstanding? Someone who goes the extra mile? Someone who has willingly given their free time to really make a difference to others?
  • Shine Young Achiever – this Award goes to a young person between the ages of 10 and 25 who is a real achiever in one or more areas of their life.
  • Shine Professional – is there a professional who you think has distinguished themselves in the world of spina bifida and hydrocephalus, whom you think deserves recognition for their work?
  • The John and Lucille Van Geest Award for outstanding contribution to the Shine Community – this award goes to a person of any age with spina bifida and/or hydrocephalus who has helped to make our community – at local or national level – a better place.

In addition to these open Awards, a Shine panel of judges will decide upon the recipients of the awards for Fundraisers of the Year, and the coveted Lifetime Contribution Award.

To send in your nomination please CLICK HERE!

Have YOU heard of the #MusicWithoutBarriers campaign? @attitudetweets

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Live music is for everyone, so we believe in #MusicWithoutBarriers - Deaf and disabled people shouldn’t have to miss out when their favourite band is in town due to poor access.

#MusicWithoutBarriers is a campaign for equal access, to raise awareness of the barriers that Deaf and disabled people are currently facing, to change perceptions of disability and highlight the support for making gigs accessible.

There are four key messages that we want to raise awareness about:

  • Improving access to live music doesn’t have to be costly
  • There is a strong business case for improving accessibility
  • Access information in advance of an event is crucial
  • Not all disabled people are wheelchair users

Read and find out more by CLICKING HERE!

Seventh place at World Championships for GB Men @BritWheelBBall

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Great Britain came out with a point to prove after their defeat in the quarter finals to Turkey yesterday and it was Terry Bywater who instigated this, opening the match with two huge three pointers to open GB’s scoring. However, the three big unit struggled to contain Iran defensively and Iran’s Ahmadi, with 10points of his own in the first quarter, kept the score close. The change to the pressing unit towards the end of the first caused Iran problems offensively and GB took advantage of this to open up a seven point gap, 27-20.

In comparison, the second quarter saw both teams struggle to score with any consistency, and give away numerous turnovers, which made it in to a scrappy period of the game. Gaz Choudhry scored nine points in the quarter as GB won it 14 -12, to give them a nine point lead going into the break.

The line-up of Manning, Highcock, Jama, Fosbrook and Sagar started the second half with a bang, going out on a 6-0 unanswered run as they forced three quick turnovers from Iran to push GB out to a fifteen point lead. Iran weren’t going to let GB run away with it and managed to draw the quarter and go into the final ten minutes nine points behind.

The momentum stayed with Iran at the start of the final quarter with GB’s pressing line-up not proving as effective as it had in the first. Through their playmaker Ahmadi and forward Gholamazad, Iran went on a ten point unanswered run of their own and drew the game back to within just one point with six minutes remaining. With just under two minutes remaining, the score was 68-65 to GB, but the insertion of Bywater back into the game gave GB the pick me up that they needed. Iran’s physicality also proved to be the undoing of them again, losing Ahmadi, who picked up his fifth personal foul, and getting into team foul trouble as GB scored 13 from 15 free throws in the final minutes of the quarter to seal the win, 77-65!

It was an important win for Europe as it secures them five qualifications spots for the Rio 2016 Paralympic Games.

Head Coach Haj Bhania “I thought the guys played really well today. We were all flat before the game with the after effects of yesterday’s loss, and with mind’s still on that I feared that they wouldn’t be up for the game but the boys came out and played and restored a bit of pride.

“Early on we really did play well and we scored pretty easily, we know offensive is very good and we can score. We know that we have a set of players on the floor that can see us through, and those guys who finished off the game today for us, nearly won the game yesterday. But Iran came back and credit to them, they played really well. Defensively we just need to be a bit smarter and we’ve got work to do on that.

“We are pleased to have won and got that extra spot for Europe as it’s important to get the extra place, as the challenge to qualify next year at the European’s doesn’t become easy but easier.

“There is obvious deflation in the team as we won all our pool games, lose 1 game and come seventh and we are in the same scenario as four years ago. We know we have work to do and we will improve and we will get better and be a threat for the future. The hurt from here will drive us on.

Top scorer, Terry Bywater, said “It was a true GB performance what a way to bounce back, the win really showed what we were made of.

“We have to take the positives away with us, at both the last two World’s our record shows fifteen wins and two losses. We have played eight games and lost one by just two points, there has been hundreds of shots taken and it came down to just one. The rest of the World were relieved we didn’t get through as we are Gold medal material.”

Top Scorers:

Great Britain

  1. Terry Bywater (25), 2. Ian Sagar (20), 3. Gaz Choudhry and Abdi Jama (12)

Iran

  1. Gholamazad (18): 2. Ahmadi (16) 3. Abdedi (9)

For more information please visit: www.gbwba.org.uk

IWBW0148 GB v Iran 2 Bywater

Time to send us YOUR nominations for the 2014 #ShineCharityAwards!

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The 2014 Shine Awards will be made at the Annual General Meeting on November 20th this year and the search for nominations is on!

The categories are:

  • Shine Volunteer of the Year
  • Shine Young Achiever
  • Shine Professional 2014
  • The John and Lucille Van Geest Award for outstanding contribution to the Shine Community

To nominate someone for an award, please CLICK HERE and fill in the form! Or contact Lyn Rylance on E: lyn.rylance@shinecharity.org.uk or T: 01733 421316

Flat and fast…or just a bit of fun? @PerkinsGER #running #charityrun #peterborough

Originally posted on Winners Wear Yellow:

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The 2014  Perkins Great Eastern Run is set to see a record number PB’s owing to the introduction of pacers in this years race.

Click here to sign up for Shine.

The flat and fast course which is 13.1 miles and runs through the historic town of Peterborough involves no fields or industrial parks so is therefore ideal for a quick finish.

The pacers, runners from local clubs have all comfortably achieved the times they are pacing in half marathons during the last 12 months. Fourteen pacers will be leading seven different half marathon target times when the race takes place on Sunday 12 October.

FREE training sessions have been announced by the race organiser’s and will be led by the experienced group of pacers and coaches from local running clubs and will be over seen by fully qualified UK Athletics endurance coaches.

Each session will be held at

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World Spina Bifida and Hydrocephalus day!October 25th, 2014
2 months to go.

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